Notice of Intent to Sole Source - Spina Bifida Registry

To provide the necessary personnel, facilities, equipment, supplies, software, software licenses, Primary Hosting and Disaster Recovery sites, Entrust IdentityGuard Multi-Factor Authentication Solution for the Electronic Medical Record (EMR), Business Associate Agreements, Amazon Web Services Cloud platform, and provide any subcontractors and related administrative and information technology support in the performance of all work in accordance with the specific tasks. The purpose of this contract is to: 1) support data collection for the National Spina Bifida Patient Registry (NSBPR) and Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) ; 2) continue maintenance of existing NSBPR and UMPIRE data and implement updates, as needed, to data collection tools for NSBPR and UMPIRE; 3) continue the data repository sites (secure Primary Hosting Site configuration, Disaster Recovery Site configuration, and Entrust Identity Guard Multi-Factor Authentication Solution); 4) continue software licenses for Unique ID Generator, Exago Report Writer, and First Databank used in the Spina Bifida Electronic Medical Record (SB EMR); and 5) as required by spina bifida clinics contributing data, implement Business Associate Agreements.